{"id":50587,"date":"2024-10-01T12:22:53","date_gmt":"2024-10-01T07:22:53","guid":{"rendered":"https:\/\/dailyausaf.com\/en\/?p=50587"},"modified":"2024-10-01T12:22:53","modified_gmt":"2024-10-01T07:22:53","slug":"kp-govt-plans-to-offer-free-treatment-for-rare-disorder","status":"publish","type":"post","link":"https:\/\/dailyausaf.com\/en\/health\/kp-govt-plans-to-offer-free-treatment-for-rare-disorder\/","title":{"rendered":"KP govt plans to offer free treatment for rare disorder"},"content":{"rendered":"<p>ISLAMABAD: The<a href=\"https:\/\/dailyausaf.com\/en\/pakistan\/kp-govt-to-take-legal-action-against-crackdown-during-pti-rawalpindi-protest\/\"> Khyber Pakhtunkhwa (KP)<\/a> government is considering offering free treatment for patients with Spinal Muscular Atrophy (SMA), a rare and debilitating genetic disorder.<\/p>\n<p>This development was announced at an event in Islamabad organized by the <a href=\"https:\/\/dailyausaf.com\/en\/health\/sindh-govt-approves-health-insurance-policy-for-police\/\">Strive Eradication of Disability Foundation (SEDF),<\/a> a nonprofit dedicated to improving the lives of persons with disabilities.<\/p>\n<p>SEDF&#8217;s founding chairman, Mohammad Yasir Khan, shared that the proposal was presented to KP government officials two months ago, and they have agreed to collaborate.<\/p>\n<p>The KP health department has requested a <a href=\"https:\/\/dailyausaf.com\/en\/pakistan\/islamabad\/rs-1-2million-budget-approved-for-rat-problem-at-parliament-house\/\">budget summary<\/a>, and treatment is expected to begin within a year. Discussions with other provincial governments are ongoing, with hopes that they will follow KP&#8217;s lead.<\/p>\n<p>The foundation has raised Rs34 million, enabling treatment for 36 patients through a partnership with a pharmaceutical company. However, 30 patients still await treatment, which remains unaffordable despite an 80% subsidized rate.<\/p>\n<p>SMA was once a leading cause of <a href=\"https:\/\/dailyausaf.com\/en\/sports\/can-you-guess-the-pakistani-cricketer-in-this-childhood-photo\/\">childhood deaths<\/a>, but recent medical breakthroughs can save lives with prompt treatment.<\/p>\n<p>This development brings hope to SMA patients and their families, highlighting the importance of collaborative efforts between government and nonprofit organizations in improving healthcare access.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>ISLAMABAD: The Khyber Pakhtunkhwa (KP) government is considering offering free treatment for patients with Spinal Muscular Atrophy (SMA), a rare and debilitating genetic disorder. This development was announced at an event in Islamabad organized by the Strive Eradication of Disability Foundation (SEDF), a nonprofit dedicated to improving the lives of persons with disabilities. SEDF&#8217;s founding [&hellip;]<\/p>\n","protected":false},"author":9,"featured_media":50588,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[7],"tags":[22509,12456,12480,22508,22507],"class_list":["post-50587","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health","tag-free-treatment-of-sma","tag-kp-cm-ali-amin-gandapur","tag-kp-govt","tag-spinal-muscular-atrophy-sma","tag-strive-eradication-of-disability-foundation-sedf"],"_links":{"self":[{"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/posts\/50587","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/comments?post=50587"}],"version-history":[{"count":2,"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/posts\/50587\/revisions"}],"predecessor-version":[{"id":50595,"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/posts\/50587\/revisions\/50595"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/media\/50588"}],"wp:attachment":[{"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/media?parent=50587"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/categories?post=50587"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dailyausaf.com\/en\/wp-json\/wp\/v2\/tags?post=50587"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}